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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

Ivemark Syndrome Association

Address

71 Milton Rd
Taunton, TA1 2JQ
United Kingdom

Phone

018-23 -257430

Fax

--

800 Number

--

Email Address

ingridgladki@aol.com

The Ivemark Syndrome Association is a voluntary, non-profit organization dedicated to providing information and support to families affected by Ivemark syndrome. Ivemark syndrome, a rare disorder that is usually apparent at birth. The symptoms are, absence of the spleen, malformations of the cardiovascular system and abnormal displacement of the abdomen and intestines. Founded in 1996, the association aims to offer support to other familes affected by Ivemark syndrome; to raise awareness of the disorder within the medical community and among other interested individuals; and to network families in similar situations. Educational materials include a regular newsletter.

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