0-9 - A - B - C - D - E - F - G - H - I - J - K - L - M - N - O - P - Q - R - S - T - U - V - W - X - Y - Z
**IMPORTANT**
The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.
Ivemark Syndrome Association
Address
71 Milton Rd
Taunton, TA1 2JQ
United Kingdom
Phone
018-23 -257430
Fax
--
800 Number
--
Email Address
ingridgladki@aol.com
The Ivemark Syndrome Association is a voluntary, non-profit organization dedicated to providing information and support to families affected by Ivemark syndrome. Ivemark syndrome, a rare disorder that is usually apparent at birth. The symptoms are, absence of the spleen, malformations of the cardiovascular system and abnormal displacement of the abdomen and intestines. Founded in 1996, the association aims to offer support to other familes affected by Ivemark syndrome; to raise awareness of the disorder within the medical community and among other interested individuals; and to network families in similar situations. Educational materials include a regular newsletter.
The National Organization for Rare Disorders (NORD) web site, its databases, and the contents thereof are copyrighted by NORD. No part of the NORD web site, databases, or the contents may be copied in any way, including but not limited to the following: electronically downloading, storing in a retrieval system, or redistributing for any commercial purposes without the express written permission of NORD. Permission is hereby granted to print one hard copy of the information on an individual disease for your personal use, provided that such content is in no way modified, and that credit for the source (NORD) and NORD’s copyright notice are included on the printed copy. Any other electronic reproduction or other printed versions are strictly prohibited.
0-9 - A - B - C - D - E - F - G - H - I - J - K - L - M - N - O - P - Q - R - S - T - U - V - W - X - Y - Z
NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.
