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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

Spina Bifida Association of America

a/k/a: SBAA


4590 MacArthur Boulevard NW
Suite 250
Washington, DC 20007-4226





800 Number




Email Address




The Spina Bifida Association of America (SBAA) is a non-profit association dedicated to promoting the rights and well being of individuals with spina bifida. The association supports research into the causes, treatment, and prevention of the disease and seeks to increase public awareness of spina bifida and its prevention. Educational advancement, social and vocational development, and mainstreaming of individuals with disabilities are also goals of the association. Established in 1973 it addresses the specific needs of affected individuals, family members, healthcare professionals, and health institutions. The association promotes the continuing education of healthcare professionals involved in the treatment of spina bifida. It maintains a toll-free information and referral service, provides direct program services for its members and chapters, conducts public awareness campaigns, and holds an annual national conference addressing spina bifida issues. The Spina Bifida Association of America publishes a bimonthly newsletter, produces and distributes publications on the entire spectrum of spina bifida issues, and provides a variety of brochures and fact sheets.

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