The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.
CDG Family Network
PO Box 860847
Plano, TX 75074
The CDG Family Network is a non-profit organization founded by parents seeking information and support for those affected by a group of disorders known as congenital disorders of glycosylation (CDG). Members of the network exchange information with families and physicians, locate new families, and raise awareness among the medical community. The CDG disorders are a group of newly discovered metabolic diseases that cause abnormal tissue and organ development affecting the entire body, especially the function of the central nervous system and the peripheral nervous system.
The National Organization for Rare Disorders (NORD) web site, its databases, and the contents thereof are copyrighted by NORD. No part of the NORD web site, databases, or the contents may be copied in any way, including but not limited to the following: electronically downloading, storing in a retrieval system, or redistributing for any commercial purposes without the express written permission of NORD. Permission is hereby granted to print one hard copy of the information on an individual disease for your personal use, provided that such content is in no way modified, and that credit for the source (NORD) and NORD’s copyright notice are included on the printed copy. Any other electronic reproduction or other printed versions are strictly prohibited.
NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.