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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

United Mitochondrial Disease Foundation

a/k/a: UMDF


8085 Saltsburg Road Suite 201
Pittsburgh, PA 15239
United States





800 Number




Email Address


The United Mitochondrial Disease Foundation (UMDF) is a voluntary, non-profit organization dedicated to providing education and support to individuals diagnosed with, or suspected of having, mitochondrial diseases. Established in 1995, the UMDF is dedicated to promoting research for cures and treatments of mitochondrial disorders and to providing support to affected families. In addition, the foundation networks with research professionals and alerts affected individuals and family members to upcoming clinical studies and their required protocols. The United Mitochondrial Disease Foundation provides educational and support materials to affected individuals, family members, and medical professionals through its computer database, directory, pamphlets, and regular newsletter.

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