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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

International Registry of Werner Syndrome

a/k/a: IRWS

Address

University of Washington Department of Pathology
Box 357470
Seattle, WA 98195-7470

Phone

206-543-5088

Fax

206-685-8356

800 Number

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TDD

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Email Address

dru2@u.washington.edu

Website

http://www.wernersyndrome.org/registry/registry.html

The International Registry of Werner Syndrome (IRWS), associated with the Department of Pathology of the University of Washington, is a non-profit research organization dedicated to providing clinical and genetic information on Werner syndrome to healthcare professionals and researchers. Werner syndrome, a rare autosomal recessive disorder, is characterized by abnormally short stature in childhood and premature aging beginning in adolescence or early adulthood. Established in 1986, IRWS works to ascertain and genotype individuals with Werner syndrome from around the world and to establish and cryopreserve cell lines from affected individuals.

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