You are here: Home / Rare Disease Information / Patient Organizations Database

Search Patient Organizations

Enter organization name or disease name to search for organizations that help people with rare diseases.

0-9 - A - B - C - D - E - F - G - H - I - J - K - L - M - N - O - P - Q - R - S - T - U - V - W - X - Y - Z


The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

Dandy-Walker Syndrome Network

a/k/a: DWSN


5030 142nd Path West
Apple Valley, MN 55124





800 Number




The Dandy-Walker Syndrome Network (DWSN) is a non-profit organization that provides information and support to individuals and family members affected by Dandy-Walker Syndrome and the physicians who treat them. Dandy-Walker Syndrome is a rare malformation of the brain that is present at birth. Established in 1996, DWSN offers family networking services and a variety of materials including studies that explain the effects of Dandy Walker Syndrome.

0-9 - A - B - C - D - E - F - G - H - I - J - K - L - M - N - O - P - Q - R - S - T - U - V - W - X - Y - Z

NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.

Copyright ©2015 NORD - National Organization for Rare Disorders, Inc. All rights reserved.
The following trademarks/registered service marks are owned by NORD: NORD, National Organization for Rare Disorders, the NORD logo, RareConnect. .