The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.
Family Voices, Inc.
3701 San Mateo Blvd NE
Albuquerque, NM 87110
The Family Voices (FV) is a non-profit, voluntary organization dedicated to ensuring that children's health issues are addressed as public and private healthcare systems undergo change in communities, states, and the nation. Established in 1995, Family Voices, which currently consists of over 40,000 members and 50 chapters, is a national grassroots clearinghouse for information and education about ways to assure and improve health care for children with disabilities and chronic conditions. Family Voices is dedicated to the principle that every child deserves quality primary and specialty health care that is affordable and within geographic reach, as well as that families are the core of this nation's health system, functioning as their children's most important health providers and caregivers. Family Voices encourages and provides support to families who want to play a role in their child's health care whether in a clinic, hospital, boardroom, agency, office, or legislative hearing. The organization also encourages partnerships between families and their child's health practitioner, policy makers, the media, and other advocates who also care about children.
The National Organization for Rare Disorders (NORD) web site, its databases, and the contents thereof are copyrighted by NORD. No part of the NORD web site, databases, or the contents may be copied in any way, including but not limited to the following: electronically downloading, storing in a retrieval system, or redistributing for any commercial purposes without the express written permission of NORD. Permission is hereby granted to print one hard copy of the information on an individual disease for your personal use, provided that such content is in no way modified, and that credit for the source (NORD) and NORD’s copyright notice are included on the printed copy. Any other electronic reproduction or other printed versions are strictly prohibited.
NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.