You are here: Home / Rare Disease Information / Patient Organizations Database

Search Patient Organizations

Enter organization name or disease name to search for organizations that help people with rare diseases.

0-9 - A - B - C - D - E - F - G - H - I - J - K - L - M - N - O - P - Q - R - S - T - U - V - W - X - Y - Z

**IMPORTANT**

The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

FOD (Fatty Oxidation Disorders) Family Support Group

a/k/a: FOD

Address

PO Box 54
Okemos, MI 48864
USA

Phone

517-381-1940

Fax

866-290-5206

800 Number

--

TDD

--

Email Address

deb@fodsupport.org

Website

http://www.fodsupport.org

The FOD (Fatty Oxidation Disorders) Family Support Group was established in 1991 as a way of dealing with the sudden death of the founders' daughter, Kristen, in 1985 from undiagnosed medium chain acyl CoA dehydrogenase deficiency (MCAD). MCAD is a very rare metabolic disorder that results in the abnormal accumulation of fatty acids in the liver and in the brain. The mission of the FOD Family Support Group is to connect and network with FOD families and professionals across the world and to provide emotional support, share practical information, and inform families of new developments in diagnosis, research and treatment.

0-9 - A - B - C - D - E - F - G - H - I - J - K - L - M - N - O - P - Q - R - S - T - U - V - W - X - Y - Z

NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.

 
Copyright ©2014 NORD - National Organization for Rare Disorders, Inc. All rights reserved.
The following trademarks/registered service marks are owned by NORD: NORD, National Organization for Rare Disorders, the NORD logo, RareConnect. .