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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

International Patient Organization for Primary Immunodeficiencies

a/k/a: IPOPI


Firside Main Road
Cornwall, PL11 3LE
United Kingdom





800 Number


Email Address


The members of the International Patient Organization for Primary Immunodeficiencies (IPOPI) are national patient organizations for the primary immunodeficiencies (PIDs). These are inherited disorders in which part of the body's immune system is missing or doesn't function properly. IPOPI's purpose is to unite the experience, expertise, resources, and influence of its members in order to achieve worldwide improvement in the care and treatment of individuals with primary immunodeficiency disorders. It strives to be responsive on an international level to the issues of greatest concern to its members. These issues include blood product safety, improving patient diagnosis, gene therapy, immunoglobulin therapy, patient organization development, patient and professional education, and prospects from mapping the human genome.

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