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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

MucolipidosisType IV Foundation

a/k/a: ML4 Foundation

Address

719 E. 17th Street
Brooklyn, NY 11230

Phone

718-434-5067

Fax

718-859-7371

800 Number

877-654-5459

TDD

--

Email Address

ptanenholz@ml4.org

Chapters

2

Website

http://www.ML4.org

The Mucolipidosis Type IV Foundation is a non-profit voluntary organization of parents and professionals committed to raising funds for medical research into the cause and possible treatments for mucolipidosis type IV. Established in 1983, the foundation uses all donations to fund scientific research. The foundation supports areas of medical research, which includes the definition of the exact biochemical mechanism of the disorder, development of treatments and discovery of a cure. In addition, the foundation is a major support system for families affected by mucolipidosis type IV. The gene has been discovered and a carrier test is available, as well as improved diagnostic techniques. The foundation is currently supporting work at Brigham and Women's Hospital, and is working closely with a team supervised by Dr. Roscoe Brady at the NIH. Educational materials produced by the foundation include a brochure and fact sheet.

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