The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.
MucolipidosisType IV Foundation
a/k/a: ML4 Foundation
719 E. 17th Street
Brooklyn, NY 11230
The Mucolipidosis Type IV Foundation is a non-profit voluntary organization of parents and professionals committed to raising funds for medical research into the cause and possible treatments for mucolipidosis type IV. Established in 1983, the foundation uses all donations to fund scientific research. The foundation supports areas of medical research, which includes the definition of the exact biochemical mechanism of the disorder, development of treatments and discovery of a cure. In addition, the foundation is a major support system for families affected by mucolipidosis type IV. The gene has been discovered and a carrier test is available, as well as improved diagnostic techniques. The foundation is currently supporting work at Brigham and Women's Hospital, and is working closely with a team supervised by Dr. Roscoe Brady at the NIH. Educational materials produced by the foundation include a brochure and fact sheet.
The National Organization for Rare Disorders (NORD) web site, its databases, and the contents thereof are copyrighted by NORD. No part of the NORD web site, databases, or the contents may be copied in any way, including but not limited to the following: electronically downloading, storing in a retrieval system, or redistributing for any commercial purposes without the express written permission of NORD. Permission is hereby granted to print one hard copy of the information on an individual disease for your personal use, provided that such content is in no way modified, and that credit for the source (NORD) and NORD’s copyright notice are included on the printed copy. Any other electronic reproduction or other printed versions are strictly prohibited.
NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.