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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

Jennifer Trust for Spinal Muscular Atrophy

a/k/a: JTSMA

Address

40 Cygnet Court
Timothy's Bridge Road
Warwickshire, CV37 9NW
United Kingdom

Phone

440-178-9267520

Fax

440-178-9268371

800 Number

800-975-3100

TDD

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Email Address

office@jtsma.org.uk

Website

http://www.jtsma.org.uk

The Jennifer Trust is a national support group for spinal muscular atrophy (SMA). It provides information, support and advice, welfare grants for specialist equipment, information for families and healthcare professionals, bereavement support and research into both practical management and potential treatments. SMA is a genetically inherited condition causing muscle wasting. The severity of the condition depends on the type and age of onset. The severest form is often fatal during the first year of life. The main purpose of the group is to provide support, information, understanding, and friendship to those whose lives are affected by SMA. Established in 1985 and currently consisting of 1,500 members, JTSMA conducts an annual weekend conference, has an area contact network of people who provide local support to affected individuals and family members, and offers a variety of educational materials including informational leaflets, booklets, a JTSMA Library Book List, a JTSMA Toy List, and a regular newsletter entitled Holding Hands.

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