You are here: Home / Rare Disease Information / Patient Organizations Database

Search Patient Organizations

Enter organization name or disease name to search for organizations that help people with rare diseases.

0-9 - A - B - C - D - E - F - G - H - I - J - K - L - M - N - O - P - Q - R - S - T - U - V - W - X - Y - Z

**IMPORTANT**

The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

MHE Coalition

a/k/a: MHE

Address

6783 York Road, Apt. #104
Parma Heights, OH 44130-4596
USA

Phone

440-842-8817

Fax

--

800 Number

--

TDD

--

Email Address

CheleZ1@yahoo.com

Website

http://www.mhecoalition.org

The MHE Coalition is a national organization dedicated to providing counseling, medical information, and a forum for individuals and families affected by multiple hereditary exostoses (MHE). MHE is a rare disorder in which bony growths or bumps (exostoses) form on the bones of affected individuals. These growths vary in size, location, and number depending upon the individual. Educational materials include a brochure entitled "Multiple Hereditary Exostoses, What Is It?" Program activities include a support group, genetic counseling referrals, advocacy, and education.

0-9 - A - B - C - D - E - F - G - H - I - J - K - L - M - N - O - P - Q - R - S - T - U - V - W - X - Y - Z

NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.

 
Copyright ©2014 NORD - National Organization for Rare Disorders, Inc. All rights reserved.
The following trademarks/registered service marks are owned by NORD: NORD, National Organization for Rare Disorders, the NORD logo, RareConnect. .