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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

Sarcoid Networking Association

a/k/a: SNA

Address

12619 S. Wilderness Way, Molalla, Oregon 97038
aghsarc@yahoo.com
Tacoma, WA 98408-3535

Phone

541-905-2092

800 Number

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TDD

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Email Address

sarcoidinformation@sarcoidosisnetwork.org

Chapters

6

Website

http://www.sarcoidosisnetwork.org

The Sarcoid Networking Association (SNA) is a 501(c)(3) national, non-profit, self-help organization dedicated to providing information and support to individuals and family members affected by sarcoidosis. Sarcoidosis, a rare multisystem disorder of unknown cause, is characterized by the abnormal formation of inflammatory masses or nodules (granulomas) consisting of certain granular white blood cells (modified macrophages or epithelioid cells) in certain organs of the body. The granulomas that are formed are thought to affect the normal structure of and, potentially, the normal functions of the affected organ(s), causing symptoms associated with the particular body system(s) in question. In individuals with sarcoidosis, such granuloma formation most commonly affects the lungs. However, in many cases, other organs may be affected. The range and severity of symptoms associated with sarcoidosis vary greatly, depending upon the specific organ(s) involved and the degree of such involvement. Established in 1992, the Sarcoid Networking Association promotes research, works to increase professional and public awareness of sarcoidosis, and provides networking services that enable affected individuals and family members to exchange information, support, and resources. The association also engages in-patient advocacy, has a directory, has a patient registry, makes appropriate referrals, and offers a variety of materials including pamphlets, brochures, audiovisual aids, and a regular newsletter entitled "Sarcoidosis Networking."

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