0-9 - A - B - C - D - E - F - G - H - I - J - K - L - M - N - O - P - Q - R - S - T - U - V - W - X - Y - Z
**IMPORTANT**
The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.
Ehlers-Danlos National Foundation
a/k/a: EDNF
Address
1760 Old Meadow Road, Suite 500
McLean, VA 22102
USA
Phone
703-506-2892
Fax
703-506-3266
TDD
--
Email Address
ednfstaff@ednf.org
Chapters
44
Website
The Ehlers-Danlos National Foundation is a voluntary, self-help, non-profit organization that is dedicated to creating resources for the Ehlers-Danlos syndrome (EDS) community. Ehlers-Danlos syndrome is a group of inherited connective tissue disorders characterized by abnormalities of the skin, ligaments, and internal organs. Although symptoms and physical features may vary greatly depending upon the specific form of EDS present, many affected individuals may have thin, fragile, hyperextensible skin that may bruise easily; abnormally loose joints that are prone to dislocation; and widespread tissue fragility with bleeding and poor healing of wounds. Established in 1985, the foundation serves as an informational link to the medical and research community on behalf of people who have been personally affected EDS. EDNF supports medical research, produces educational and support materials and a quarterly newsletter, holds annual conference, and has 44 local groups which provide support for the EDS community throughout the country.
The National Organization for Rare Disorders (NORD) web site, its databases, and the contents thereof are copyrighted by NORD. No part of the NORD web site, databases, or the contents may be copied in any way, including but not limited to the following: electronically downloading, storing in a retrieval system, or redistributing for any commercial purposes without the express written permission of NORD. Permission is hereby granted to print one hard copy of the information on an individual disease for your personal use, provided that such content is in no way modified, and that credit for the source (NORD) and NORD’s copyright notice are included on the printed copy. Any other electronic reproduction or other printed versions are strictly prohibited.
0-9 - A - B - C - D - E - F - G - H - I - J - K - L - M - N - O - P - Q - R - S - T - U - V - W - X - Y - Z
NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.
