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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

Genetic Alliance


4301 Connecticut Avenue NW
Suite 404
Washington, DC 20008-2369





800 Number




Email Address


The Genetic Alliance is an international coalition comprised of more than 600 advocacy, research and healthcare organizations that represent millions of individuals with genetic conditions and their interests. As a broad-based coalition of key stakeholders, it leverages the voices of millions of individuals living with genetic conditions. The board and staff of Genetic Alliance empower individuals and families affected by genetic conditions by promoting public participation in informed dialogue; access to quality resources essential for informed choices; leadership development within advocacy communities; involvement of consumers in public policy and healthcare discussions; and collaboration with diverse, underserved and underrepresented communities.

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