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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

Pulmonary Hypertension Association

a/k/a: PHA

Address

801 Roeder Road, Ste 1000
Silver Spring, MD 20910

Phone

301-565-3004

Fax

301-565-3994

TDD

--

Email Address

PHA@PHAssociation.org

Chapters

120

Website

http://www.PHAssociation.org

PHA is an online support group comprised of patients and parents who support families with pulmonary hypertension (PHA). This group offers advice and support for those who are undiagnosed but potentially have PHA, for newly diagnosed PHA patients and those who have been diagnosed with PHA long-term. PHA has experience with PHA type 1 and type 2, as well as type 1 dominant and recessive. This online community also runs a closed group that is only open to patients and parents affected by PHA. This group serves the international PHA community and offers support in several languages. Pulmonary hypertension is a rare disorder affecting the blood vessels in the lungs. High blood pressure in the main artery can cause difficulty breathing in PHA patients.

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