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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

AED Pregnancy Registry - Massachusetts General Hospital

a/k/a: AED Pregnancy Registry

Address

121 Innerbelt Road, Room 220
Somerville, MA 02143

Phone

617-724-9550

Fax

617-724-8307

800 Number

888-233-2334

TDD

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Email Address

holmes.lewis@mgh.harvard.edu

Website

http://www.aedpregnancyregistry.org

The North American AED (antiepileptic drug) Pregnancy Registry was established in 1997 for pregnant women in the United States and Canada at the Massachusetts General Hospital in Boston, Massachusetts. It was established with funds provided by six companies that manufacture "old" and "new" anticonvulsant drugs. The major objective is to obtain and publish information on the frequency of major malformations, such as heart defects, spina bifida and cleft lip, among infants whose mothers had taken one or more AEDs to prevent seizures or to treat any other medical condition. The highest priority was new information on the many "new" AEDs marketed in the past 10 years.

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