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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

FRAXA Research Foundation

a/k/a: FRAXA

Address

10 Prince Place
Newburyport, MA 01950
USA

Phone

978-462-1866

Fax

978-463-9985

800 Number

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TDD

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Email Address

info@fraxa.org

Chapters

30

Website

http://www.fraxa.org

The FRAXA Research Foundation is a voluntary, non-profit organization dedicated to providing support for individuals affected by Fragile X syndrome, an X-linked disorder characterized by mental retardation, a large jaw, a high forehead, enlarged testes, and/or other abnormalities in affected males and, in some cases, mild mental retardation in females (heterozygotes). The foundation is also committed to aiding the research efforts of concerned medical professionals throughout the United States. Founded in 1994 by parents of children with Fragile X syndrome, the FRAXA Research Foundation is dedicated to educating public officials and the general population about Fragile X and to supporting ongoing medical research. The foundation works toward these goals by awarding research grants to university-based scientists and physicians whose purpose is to find treatments for Fragile X syndrome and by encouraging the publication of articles to increase awareness of Fragile X syndrome. In addition, the FRAXA Research Foundation puts families with affected children in touch with one another and welcomes questions about this disorder from concerned individuals.

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