You are here: Home / Rare Disease Information / Patient Organizations Database

Search Patient Organizations

Enter organization name or disease name to search for organizations that help people with rare diseases.

0-9 - A - B - C - D - E - F - G - H - I - J - K - L - M - N - O - P - Q - R - S - T - U - V - W - X - Y - Z


The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.



191 Portsmouth Avenue
Ontario, K7L 4T8





800 Number




Email Address


The Ongwanada is dedicated to supporting people with developmental disabilities and their families, responding to their evolving needs, respecting and advocating for their rights, and increasing their opportunities to have choices and make decisions. For those with developmental disabilities, Ongwanada is committed to individualized approaches to meeting their needs. Facilitating involvement, social inclusion, and active participation in community life. Supporting and encouraging continual growth and self-expression. Fostering positive and productive relationships with others and responding to both individual and community needs. Ongwanada is committed to supporting, developing, and recognizing its skilled and caring staff. Supporting educational efforts through university partnerships and teaching agreements with educational institutions. Fostering and applying innovative approaches in service, research, and teaching. Pursuing flexible and collaborative initiatives with community partners and government and providing the highest quality of care in a safe environment.

0-9 - A - B - C - D - E - F - G - H - I - J - K - L - M - N - O - P - Q - R - S - T - U - V - W - X - Y - Z

NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.

Copyright ©2015 NORD - National Organization for Rare Disorders, Inc. All rights reserved.
The following trademarks/registered service marks are owned by NORD: NORD, National Organization for Rare Disorders, the NORD logo, RareConnect. .