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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

Canadian Syringomyelia Network

a/k/a: CSN


69 Penny Crescent
Ontario, L3P 5X7





800 Number




Email Address


The Canadian Syringomyelia Network (CSN) is a non-profit organization dedicated to serving as a support network for people with syringomyelia, a rare progressive condition characterized by the presence of abnormal, fluid-filled cavities within the spinal cord. Established in 1992, CSN acts as an information and referral network; builds awareness among the community; assists those who wish to establish support groups; compiles a database of people in Canada who have shown an interest in CSN and its mission; and produces a newsletter for its members and those interested in CSN's activities. The Canadian Syringomyelia Network also organizes periodic meetings and conferences, offers patient networking services, provides referrals, and produces educational materials including brochures, reports, and a regular newsletter.

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