You are here: Home / Rare Disease Information / Patient Organizations Database

Search Patient Organizations

Enter organization name or disease name to search for organizations that help people with rare diseases.

0-9 - A - B - C - D - E - F - G - H - I - J - K - L - M - N - O - P - Q - R - S - T - U - V - W - X - Y - Z

**IMPORTANT**

The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

National Society of Genetic Counselors

a/k/a: NSGC

Address

330 N. Wabash Avenue
Suite 2000
Chicago, IL 60611

Phone

312-321-6834

Fax

312-673-6972

800 Number

--

TDD

--

Email Address

nsgc@nsgc.org

Website

http://www.nsgc.org

The National Society of Genetic Counselors is the professional membership organization for the genetic counseling profession, those specialists who incorporate a balance of medical genetics and counseling skills and who assign risk analysis based on family medical histories. The vision of the Society is to be the leading voice, authority, and advocate for the genetic counseling profession. The mission of the Society is to promote the genetic counseling profession as an integral part of health care delivery, education, research, and public policy. Genetic counselors are health professionals with specialized graduate degrees and experience in the areas of genetics and counseling. Genetic counselors work as members of a health care team, providing information and support to families who have members with birth defects or genetic disorders and to families who may be at risk for a variety of inherited conditions. They also serve as patient advocates and refer individuals and families to community or state support services. Genetic counselors serve as educators and resource people for other health care professionals and for the general public. THE NATIONAL SOCIETY OF GENETIC COUNSELORS DOES NOT MAINTAIN OR DISSEMINATE INFORMATION ABOUT SPECIFIC GENETIC DISORDERS.

0-9 - A - B - C - D - E - F - G - H - I - J - K - L - M - N - O - P - Q - R - S - T - U - V - W - X - Y - Z

NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.

 
Copyright ©2014 NORD - National Organization for Rare Disorders, Inc. All rights reserved.
The following trademarks/registered service marks are owned by NORD: NORD, National Organization for Rare Disorders, the NORD logo, RareConnect. .