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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.
TEXGENE - Texas Genetics Network
a/k/a: TEXGENE
Address
UTHSCA - Dept. of Pediatrics
7703 Floyd Curl Dr.
San Antonio, TX 78284-7802
Phone
210-567-7481
Fax
210-567-7479
800 Number
--
TDD
--
Email Address
visio@uthscsa.edu
Website
http://www.tdh.state.tx.us/texgene/texgene.htm
The Texas Genetics Network (TEXGENE) is a statewide consortium of individuals and organizations dedicated to providing genetic services and representing people with genetic disorders or birth defects. Established in 1988, TEXGENE is the advisory body to the legislatively mandated Texas Interagency Council for Genetic Services and a member of the National Council of Regional Genetic Services (CORN). The long-term goal of TEXGENE is to significantly decrease the incidence of genetic disease in Texas and alleviate the suffering and anxiety of affected individuals and their families due to the threat or fact of genetic disease. The immediate and long-term objectives of TEXGENE include establishing and maintaining a well-coordinated statewide network of human genetics services; supporting a central office to coordinate genetic activities within the state; maintaining and expanding newborn screening and adult carrier screening programs; and collecting data on the provision of genetic services. TEXGENE’s objectives also include coordinating the laboratory diagnostic capacity of existing genetics groups in the areas of biochemistry, cytogenetics, and prenatal diagnosis and initiating quality control procedures; developing human genetic educational programs targeted at various health care provider groups and the general community; reviewing, improving, and maximizing current sources of funding for genetic services by coordinating with appropriate payment sources; and considering, deliberating, and making recommendations concerning ethical issues developed during the activities of TEXGENE. Program activities include engaging in patient advocacy and lobbying, providing networking services, engaging in patient and professional education, and providing referrals to genetic services and support groups. TEXGENE has a database of approximately 2,500 organizations and individuals interested in human genetics and linkage to statewide and national networks of genetics consumers and professionals. TEXGENE also has a Speakers Bureau and a variety of materials including posters, videos, brochures, pamphlets, curricula for consumers and professionals on human genetics issues, and a regular newsletter. TEXGENE has a web site on the Internet at
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