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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

X-Linked Alpha Thalassemia Family Support Network

a/k/a: XLATFSN

Address

1437 Cool Springs Drive
Mesquite, TX 75181

Phone

972-222-0050

Fax

--

800 Number

--

TDD

--

Email Address

ATR-X@raredisorders.com

Website

http://www.angelfire.com/biz2/atrx/

The X-linked Alpha Thalassemia Family Support Network is a national, self-help organization dedicated to providing information and support to individuals and families affected by X-linked alpha thalassemia mental retardation syndrome (ATR-X). This extremely rare disorder, that is fully expressed in males only, is characterized by alpha thalassemia, severe mental retardation, severe delays in the acquisition of skills requiring coordination of mental and muscular activities (psychomotor retardation), genital abnormalities, and characteristic facial abnormalities. The network engages in patient advocacy, promotes patient and general education and offers networking services.

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