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National Niemann-Pick Disease Foundation, Inc.
401 Madison Avenue
Fort Atkinson, WI 53538-0049
The National Niemann-Pick Disease Foundation, Inc., is an international, voluntary, non-profit organization made up of parents, medical professionals, friends, relatives, and others who are committed to finding a cure for Niemann-Pick disease (NPD). Niemann-Pick is a group of rare inherited diseases in which excessive amounts of a fatty substance called sphingomyelin and/or cholesterol accumulate in many organs of the body. Established in 1991, the National Niemann-Pick Disease Foundation is dedicated to promoting medical research into the cause and cure of Niemann-Pick disease; providing medical and educational information to assist in the correct diagnosis and referral of children with Niemann-Pick disease; and providing support to families of affected children. The foundation is also committed to facilitating genetic counseling for parents who are known carriers of Niemann-Pick disease; encouraging the sharing of research information among scientists; and supporting legislation that is beneficial to affected individuals and family members. The National Niemann-Pick Disease Foundation conducts a national conference and provides a variety of educational and support materials.
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