The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.
National Council on Patient Information and Education
200-A Monroe Street
Rockville, MD 20850-4448
The National Council on Patient Information and Education (NCPIE) is a non-profit coalition of organizations dedicated to improving communication between healthcare professionals, patients, and consumers. Established in 1982 and consisting of 250 members, NCPIE works toward its goal to encourage patients to work with their healthcare providers and to follow their medication therapy safely and effectively. NCPIE members are national and international organizations representing physician, pharmacy, nursing, and other healthcare professional groups; pharmaceutical research and manufacturing companies; managed care organizations; and the Food and Drug Administration (FDA). The objectives of the organization are to increase consumer awareness about medicines and to assist in the development of more useful prescription medicine information.
The National Organization for Rare Disorders (NORD) web site, its databases, and the contents thereof are copyrighted by NORD. No part of the NORD web site, databases, or the contents may be copied in any way, including but not limited to the following: electronically downloading, storing in a retrieval system, or redistributing for any commercial purposes without the express written permission of NORD. Permission is hereby granted to print one hard copy of the information on an individual disease for your personal use, provided that such content is in no way modified, and that credit for the source (NORD) and NORD’s copyright notice are included on the printed copy. Any other electronic reproduction or other printed versions are strictly prohibited.
NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.