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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

Fanconi Anemia Research Fund, Inc.

a/k/a: FA Research Fund

Address

1801 Willamette St
Suite 200
Eugene, OR 97401
USA

Phone

541-687-4658

Fax

541-687-0548

800 Number

800-828-4891

TDD

--

Email Address

info@fanconi.org

Website

http://www.fanconi.org/

The Fanconi Anemia Research Fund is a non-profit organization that raises funds for medical research into Fanconi anemia, an inherited condition that leads to a deficiency of certain blood cells that are produced by the bone marrow. Established in 1989, the organization supports numerous investigators who are working on various approaches to gene identification and therapy. The Fanconi Anemia Research Fund sponsors an annual international Fanconi Anemia Research Symposium to stimulate scientific progress and collaborative research among scientists. Additionally, the fund develops and maintains a communication network that supplies information and support to affected families and their physicians. Educational materials include the "FA Handbook", "Standards for Clinical Care" and twice yearly Family Newsletters and a Science Letter. The fund also moderates an electronic list serve for FA patients and their parents.

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