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a/k/a: LQTS-EIC


Ronnerweg 2
Nidau, 2560





800 Number




Email Address


The is a web site on the Internet created by an individual with LQTS from Switzerland. There are two forms of long QT syndrome, one without deafness (Romano Ward syndrome) and one with deafness (Jervell and Lange-Nielsen syndrome). Long QT syndrome is characterized by an abnormality in the heart's electrical system. In the lower chambers (ventricles) of the heart, the normal duration of one phase of electrical activity is referred to as the Q-T interval. In long QT syndrome, there are abnormally prolonged intervals of electrical activity in the ventricles (prolonged Q-T), resulting in seizures and a fast, uneven heartbeat (ventricular fibrillation). The main goal of the web site is to provide information about long QT syndrome to affected individuals, their families, medical professionals, and interested individuals worldwide. The site also provides information on diagnostic criteria and potential therapies and has dynamic linkage to sites with further information.

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