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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

Prune Belly Syndrome Network (Deleted)

a/k/a: PBSN

Address

PO Box 3914
Oshkosh, WI 54903-3914

Phone

--

Fax

--

TDD

--

Email Address

nickandrewmatt@sbcglobal.net

Website

http://www.prunebelly.org

The Prune Belly Syndrome Network is an international, non-profit organization dedicated to providing information and support services for individuals with prune belly syndrome, family members, and healthcare professionals. Prune-belly syndrome, also known as Eagle-Barrett syndrome, is a rare disorder characterized by partial or complete absence of the stomach (abdominal) muscles, failure of both testes to descend into the scrotum (bilateral cryptorchidism), and/or urinary tract malformations such as abnormal widening (dilation) of the tubes that bring urine to the bladder (ureters), accumulation of urine in the ureters (hydroureter) and the kidneys (hydronephrosis), and/or backflow of urine from the bladder into the ureters (vesicoureteral reflux). Complications associated with prune-belly syndrome may include underdevelopment of the lungs (pulmonary hypoplasia) and/or chronic renal failure. The exact cause of prune-belly syndrome is not known. The Support Network has a web site on the Internet that provides general information on prune-belly syndrome, articles from healthcare professionals concerning treatment and care, dynamic linkage to additional sources of information, and several online networking opportunities through its e-mail mailing list and chat room. Information on subscribing to the Prune Belly Syndrome Support Network's online mailing list can be obtained by visiting the organization's web site at http://healthcon.com.

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