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Prune Belly Syndrome Network
a/k/a: PBSN
Address
PO Box 3914
Oshkosh, WI 54903-3914
Phone
--
Fax
--
TDD
--
Email Address
nickandrewmatt@sbcglobal.net
Website
The Prune Belly Syndrome Network is an international, non-profit organization dedicated to providing information and support services for individuals with prune belly syndrome, family members, and healthcare professionals. Prune-belly syndrome, also known as Eagle-Barrett syndrome, is a rare disorder characterized by partial or complete absence of the stomach (abdominal) muscles, failure of both testes to descend into the scrotum (bilateral cryptorchidism), and/or urinary tract malformations such as abnormal widening (dilation) of the tubes that bring urine to the bladder (ureters), accumulation of urine in the ureters (hydroureter) and the kidneys (hydronephrosis), and/or backflow of urine from the bladder into the ureters (vesicoureteral reflux). Complications associated with prune-belly syndrome may include underdevelopment of the lungs (pulmonary hypoplasia) and/or chronic renal failure. The exact cause of prune-belly syndrome is not known. The Support Network has a web site on the Internet that provides general information on prune-belly syndrome, articles from healthcare professionals concerning treatment and care, dynamic linkage to additional sources of information, and several online networking opportunities through its e-mail mailing list and chat room. Information on subscribing to the Prune Belly Syndrome Support Network's online mailing list can be obtained by visiting the organization's web site at http://healthcon.com.
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