You are here: Home / Rare Disease Information / Patient Organizations Database

Search Patient Organizations

Enter organization name or disease name to search for organizations that help people with rare diseases.

0-9 - A - B - C - D - E - F - G - H - I - J - K - L - M - N - O - P - Q - R - S - T - U - V - W - X - Y - Z

**IMPORTANT**

The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

Dysautonomia Foundation, Inc.

a/k/a: DF

Address

315 W 39th St
Suite 701
New York, NY 10018
USA

Phone

212-279-1066

Fax

212-279-2066

800 Number

--

TDD

--

Email Address

info@famdys.org

Chapters

16

Website

http://www.familialdysautonomia.org

The Dysautonomia Foundation (DF) is a national, non-profit organization founded in 1951 by parents of children with familial dysautonomia, a rare genetic disorder characterized by dysfunction of the autonomic nervous system (ANS). Symptoms and findings may include absence of pain sensation, defective secretion and discharge of tears, unusual fluctuations of body temperature, unstable blood pressure, skin blotching, impaired coordination, abnormally decreased reflex responses, and/or other abnormalities. The foundation has chapters located throughout the United States, Canada, the United Kingdom, and Israel. It provides informational materials and supports ongoing medical research and the clinical care of children with this disorder by maintaining the Familial Dysautonomia Treatment and Evaluation Center at New York University Medical Center in New York City and the Israeli Familial Dysautonomia Center at Hadassah Hospital in Jerusalem. In addition, the foundation is dedicated to funding medical research.

0-9 - A - B - C - D - E - F - G - H - I - J - K - L - M - N - O - P - Q - R - S - T - U - V - W - X - Y - Z

NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.

 
Copyright ©2014 NORD - National Organization for Rare Disorders, Inc. All rights reserved.
The following trademarks/registered service marks are owned by NORD: NORD, National Organization for Rare Disorders, the NORD logo, RareConnect. .