0-9 - A - B - C - D - E - F - G - H - I - J - K - L - M - N - O - P - Q - R - S - T - U - V - W - X - Y - Z
**IMPORTANT**
The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.
VATER Connection Support
Address
800 Number
--
TDD
--
Email Address
angie@vaterconnection.org
Chapters
2
Website
http://www.thevaterconnection.com/index.asp
The VATER Connection Support is website founded by two mothers of children with VATER Association, a rare disorder that affects several organ systems of the body. "VATER," an acronym for the characteristic abnormalities associated with the disorder, stands for (V)ertebral defects, abnormalities of certain bones of the spinal column; (A)nal atresia/imperforate anus, absence or abnormal blockage of the anal opening; (T)racheo (E)sophageal defects, the presence of an abnormal connection (fistula) between the esophagus and the windpipe (trachea) and/or other malformations; and (R)enal and/or radial limb defects, malformation of the kidneys and/or abnormalities affecting the thumb side of the arm. In most cases, the disorder occurs randomly for unknown reasons (sporadically); however, some familial cases have been identified. The VATER Connection is dedicated to providing networking opportunities that enable affected families to exchange information, resources, and mutual support.
The National Organization for Rare Disorders (NORD) web site, its databases, and the contents thereof are copyrighted by NORD. No part of the NORD web site, databases, or the contents may be copied in any way, including but not limited to the following: electronically downloading, storing in a retrieval system, or redistributing for any commercial purposes without the express written permission of NORD. Permission is hereby granted to print one hard copy of the information on an individual disease for your personal use, provided that such content is in no way modified, and that credit for the source (NORD) and NORD’s copyright notice are included on the printed copy. Any other electronic reproduction or other printed versions are strictly prohibited.
0-9 - A - B - C - D - E - F - G - H - I - J - K - L - M - N - O - P - Q - R - S - T - U - V - W - X - Y - Z
NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.
