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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.
euro-ATAXIA
Address
Lincoln House
Kennington Park
London, SW9 6DE
United Kingdom
Phone
440-207-5821444
800 Number
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TDD
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Email Address
marco.meinders@euro-ataxia.eu
Chapters
9
Website
The euro-ATAXIA, the European Federation of Hereditary Ataxias, is a multinational federation of non-profit associations dedicated to encouraging and supporting research to identify the causes and mechanisms of the hereditary ataxias. Hereditary ataxias are a group of progressive, chronic, neurological disorders that affect voluntary movement and coordination. Established in Belgium in 1989, euro-ATAXIA is an alliance of associations representing Belgium, France, Spain, The Netherlands, Germany, Sweden, Switzerland, Ireland, Finland, Great Britain, and Italy. It endeavors to monitor and support research into hereditary ataxias; centralize and communicate information to its members; encourage collaboration of all international organizations concerned with hereditary ataxia; examine the social, political, cultural, and other issues that concern the well-being of people with hereditary ataxia; and ensure that medical research into hereditary ataxias is ongoing. Additionally, euro-ATAXIA facilitates patient networking and publishes a periodic newsletter.
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