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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

FundaciĆ³n Alfa-1 de Puerto Rico

Address

PMB 318, 2000 Carr. 8177, Suite 26
Guaynabo, PR 00966-3762

Phone

787-747-6270

Fax

787-747-6270

800 Number

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TDD

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Email Address

fundacion@alfa1.org

Website

http://www.alfa1.org

The Alpha-1 Foundation of Puerto Rico is an international, non-profit organization dedicated to providing support to individuals and families affected by alpha-1 antitrypsin deficiency through programs of education, advocacy, and support of research. Alpha-1 antitrypsin deficiency is a rare hereditary metabolic disease characterized by low levels of the enzyme alpha-1 antitrypsin and progressive degenerative and destructive changes in the lungs. The organization's main goal is to increase awareness of alpha-1 antitrypsin deficiency among the general public and healthcare professionals. Established in 1997, the organization also encourages early detection and treatment of this disorder. It produces educational materials, including translations of brochures published by the Alpha-1 Antitrypsin Deficiency Association.

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