The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.
Fundación Alfa-1 de Puerto Rico
PMB 318, 2000 Carr. 8177, Suite 26
Guaynabo, PR 00966-3762
The Alpha-1 Foundation of Puerto Rico is an international, non-profit organization dedicated to providing support to individuals and families affected by alpha-1 antitrypsin deficiency through programs of education, advocacy, and support of research. Alpha-1 antitrypsin deficiency is a rare hereditary metabolic disease characterized by low levels of the enzyme alpha-1 antitrypsin and progressive degenerative and destructive changes in the lungs. The organization's main goal is to increase awareness of alpha-1 antitrypsin deficiency among the general public and healthcare professionals. Established in 1997, the organization also encourages early detection and treatment of this disorder. It produces educational materials, including translations of brochures published by the Alpha-1 Antitrypsin Deficiency Association.
The National Organization for Rare Disorders (NORD) web site, its databases, and the contents thereof are copyrighted by NORD. No part of the NORD web site, databases, or the contents may be copied in any way, including but not limited to the following: electronically downloading, storing in a retrieval system, or redistributing for any commercial purposes without the express written permission of NORD. Permission is hereby granted to print one hard copy of the information on an individual disease for your personal use, provided that such content is in no way modified, and that credit for the source (NORD) and NORD’s copyright notice are included on the printed copy. Any other electronic reproduction or other printed versions are strictly prohibited.
NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.