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Prader-Willi Alliance of New York
a/k/a: PWA
Address
PO Box 222
Baldwinsville, NY 13027
Phone
716-276-2211
800 Number
800-442-1655
TDD
--
Email Address
alliance@prader-willi.org
Website
The Prader-Willi Alliance of New York, Inc. is a national, non-profit public charity that, under the direction of a national Board of Directors made up of parents and professionals in many fields, carries out its mission of funding projects for the betterment of individuals with Prader-Willi syndrome (PWS) and their families. Prader Willi syndrome is a complex multisystem disorder characterized by muscular weakness during infancy (infantile hypotonia); failure to thrive; a decrease in the efficiency of the testes or ovaries (hypogonadism); short stature and impaired intellectual and behavioral functioning. Eating excessive amounts of food (hyperphagia) leads to severe obesity in early childhood and adolescence. The major purposes of the Foundation are the publication and dissemination of information in printed and electronic media; providing referral, advocacy, and support services to individuals with PWS and their families; the support of residential living programs and projects; the financial support of organizations dedicated to serving individuals with PWS and their families; the direct support of crisis intervention services for individuals with PWS and their families; and other services, programs and activities approved by the Board of Directors that will result in an enhanced quality of life for individuals with Prader-Willi syndrome.
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