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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

Prader-Willi Alliance of New York

a/k/a: PWA

Address

PO Box 222
Baldwinsville, NY 13027

Phone

716-276-2211

800 Number

800-442-1655

TDD

--

Email Address

alliance@prader-willi.org

Website

http://www.prader-willi.org

The Prader-Willi Alliance of New York, Inc. is a national, non-profit public charity that, under the direction of a national Board of Directors made up of parents and professionals in many fields, carries out its mission of funding projects for the betterment of individuals with Prader-Willi syndrome (PWS) and their families. Prader Willi syndrome is a complex multisystem disorder characterized by muscular weakness during infancy (infantile hypotonia); failure to thrive; a decrease in the efficiency of the testes or ovaries (hypogonadism); short stature and impaired intellectual and behavioral functioning. Eating excessive amounts of food (hyperphagia) leads to severe obesity in early childhood and adolescence. The major purposes of the Foundation are the publication and dissemination of information in printed and electronic media; providing referral, advocacy, and support services to individuals with PWS and their families; the support of residential living programs and projects; the financial support of organizations dedicated to serving individuals with PWS and their families; the direct support of crisis intervention services for individuals with PWS and their families; and other services, programs and activities approved by the Board of Directors that will result in an enhanced quality of life for individuals with Prader-Willi syndrome.

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