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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.
National Gaucher Foundation of Canada
Address
4100 Yonge Street
Suite 610
Ontario, M2P 2B5
Canada
Phone
613-521-5050
800 Number
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TDD
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Email Address
ChristineWhite@gauchercanada.ca
Chapters
4
Website
http://www.gauchercanada.ca/en/aboutus.html
The National Gaucher Foundation of Canada is a national, non-profit organization dedicated to the advancement of research towards the treatment and eventual cure of Gaucher disease, a rare disorder of fat metabolism. In individuals with Gaucher disease, deficiency of the enzyme glucosylceramidase results in abnormal fatty accumulation in storage cells (Gaucher cells) in certain organs of the body, such as the spleen, liver, lymph nodes, and bone marrow. Depending upon the form of the disorder, associated symptoms and findings may become apparent during infancy, childhood or adolescence, or adulthood. The National Gaucher Foundation of Canada was established in 1991 and is committed to preparing and distributing educational brochures; conducting seminars and lectures regarding Gaucher disease for medical personnel, affected individuals, family members, and the general public; and providing support services for individuals with Gaucher disease and their families. In addition, it funds and encourages research, and provides advocacy on behalf of patients and families.
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