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Canadian Association for Familial Ataxias - Claude St-Jean Foundation
3800 Radisson Street Office 110
Quebec, H1M 1X6
The Association Canadienne des Ataxies Familiales/Canadian Association for Familial Ataxias (ACAF) is a non-profit organization in Quebec dedicated to ensuring the pursuit of medical research on familial (hereditary) ataxias, a group of rare genetic disorders. Initial symptoms include impaired coordination of voluntary movement (ataxia) and unsteadiness when walking (uneven gait). Due to progressive difficulties walking, affected individuals eventually need to use a mobility aid device (cane, walker or wheelchair). The Canadian Association of Familial Ataxias (formerly known as The Canadian Association of Friedreich's Ataxia) was established in 1972 and currently has approximately 600 members. The association supports various projects in which researchers are working to better understand and eventually find cures for the different forms of familial ataxias. CAFA also offers a variety of materials that provide understandable information on the disorders, and research updates.
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