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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.
National Congenital CMV Disease Registry
Address
Feigin Center
Suite 1150
Houston, TX 77030-2399
USA
Phone
832-824-4387
Fax
832-825-4347
800 Number
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TDD
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Email Address
cmv@bcm.edu
Website
http://www.bcm.edu/pediatrics/index.cfm?Realm=99991126&This_Template=pedi_home.cfm
The National Congenital CMV Disease Registry, based at Baylor College of Medicine in Houston, Texas, collects information on infants born after 1990 with congenital cytomegalovirus (CMV). The registry is committed to identifying disease patterns over time; describing factors that may increase a mother's risk of delivering an infant with congenital cytomegalovirus infection; and providing the foundation for future intervention programs and collaborative research. All newborns with a confirmed diagnosis of congenital CMV are eligible to be registered. To do so, have the pediatrician obtain and complete our registry form. In addition to these activities, the Congenital CMV Disease Registry functions as a national clearinghouse for information about congenital CMV. It distributes reprints of medical articles on human cytomegalovirus infection, publishes a newsletter entitled "CMV Updates," and maintains a CMV Parent-To-Parent Support Network, and publishes an annual newsletter.
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