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P.O. Box 56-1111
Miami, FL 33256-1111
The IVH Parents is a voluntary non-profit self-help organization dedicated to sharing information concerning intraventricular hemorrhages (IVHs) of the brain, providing support to affected individuals and their families, and conducting ongoing follow-up. Established in 1984, the group consists of parents as well as professionals who work with affected children including physicians from several specialties, therapists, nurses, researchers, and teachers. Intraventricular hemorrhage of the brain, or bleeding into the brain’s cerebrum, can occur after a premature birth or due to a traumatic full-term birth. Intraventricular hemorrhage may result in cerebral palsy, hydrocephalus, sensory loss, seizures, mental retardation, or multiple disabilities. IVH Parents enables families with affected children to network with one another in order to exchange information and mutual support. The organization also has a registry of children with IVH, provides a directory of members, and publishes a regular newsletter for parents and professionals.
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