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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

European Lupus Erythematosus Federation

a/k/a: ELEF

Address

27-43 Eastern Road
Romford
Essex, RM1 3NH
United Kingdom

Phone

440-170-87312 51

Fax

440-170-8731252

800 Number

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TDD

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Email Address

mariateresa@lupus-italy.org

Chapters

15

Website

http://www.lupus-italy.org/elef/

The European Lupus Erythematosus Federation (ELEF) is an international, voluntary federation that consists of national lupus groups throughout Europe. Systemic lupus erythematosus (SLE), also known as lupus, is an autoimmune disorder characterized by chronic inflammation affecting connective tissues of the body. Different tissues and organs may be affected, and the range and severity of associated symptoms and findings may vary from case to case. In some affected individuals, symptoms may include extreme fatigue; muscle pain; joint swelling, stiffness, and pain; skin rashes; hair loss; and other abnormalities. Established in 1989, the European Lupus Erythematosus Federation currently represents 15 countries, 16 lupus organizations, and approximately 16,500 affected individuals and family members. The ELEF is committed to collecting information on all medical and psychosocial aspects of lupus; promoting awareness of the disease among individuals with lupus, the general public, and members of the health, welfare, and medical professions; and encouraging and conducting surveys and research projects related to the disease and publishing the results of such research. The federation is also dedicated to promoting awareness of lupus support groups that are available for affected individuals and family members in each member country; sponsoring or promoting European symposia on all aspects of lupus; gaining representation on any European or international body whose interests will be of benefit to members of the federation; and assisting with the establishment of support groups in other European countries where none currently exists.

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