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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

Muscular Dystrophy Australia

a/k/a: MDA

Address

111 Boundary Road
North Melbourne
Australia

Phone

613-932-09555

Fax

613-932-09595

800 Number

180-065-6632

TDD

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Email Address

info@mda.org.au

Website

http://www.mda.org.au

Muscular Dystrophy Australia is a non-profit organization in Australia that was founded in the early 1970s by a group of people affected by muscular dystrophy (MD). Muscular dystrophy refers to a group of genetic disorders characterized by progressive degeneration of muscle fibers, resulting in associated weakness, disability, and deformity. The different forms of muscular dystrophy may be categorized based upon age at onset, specific muscle groups affected, rate of disease progression, and mode of inheritance. Muscular Dystrophy Australia is committed to improving the quality of life of individuals with muscular dystrophy and other neuromuscular diseases. To fulfill its mission and objectives, the association provides a variety of educational materials, conducts MDA camps for children and adults with neuromuscular disorders, and promotes and supports research. The association's materials include information sheets on different forms of muscular dystrophy, parent's guides, glossaries, and materials discussing the various aspects of these disorders. In 1985, the association established the Muscular Dystrophy Research Foundation to help ensure sufficient funding to accelerate research and to provide funds required for treatment programs. MDA, in association with St. Vincent's Hospital and the Department of Medicine, Melbourne University, is also affiliated with the Melbourne Neuromuscular Research Centre, and sponsors scientific research seminars and conferences.

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