You are here: Home / Rare Disease Information / Patient Organizations Database

Search Patient Organizations

Enter organization name or disease name to search for organizations that help people with rare diseases.

0-9 - A - B - C - D - E - F - G - H - I - J - K - L - M - N - O - P - Q - R - S - T - U - V - W - X - Y - Z


The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

Muscular Dystrophy Ireland

a/k/a: MDI


75 Lucan Road







Email Address




The Muscular Dystrophy Ireland (MDI) is a national, voluntary, non-profit organization with a membership of over 500 individuals and families throughout Ireland. The organization's primary objective is to provide support to people with neuromuscular conditions and their families through the provision of a range of services, including family support, information, respite services, holidays, youth activities, transport, and independent living and training opportunities. Muscular dystrophy is a collective term referring to a variety of genetic neuromuscular disorders characterized by progressive degeneration and weakening of muscles. The different forms of muscular dystrophy may be categorized based upon age at onset, specific muscle groups affected, rate of disease progression, the genetic mutation and mode of inheritance. Muscular Dystrophy Ireland was founded in 1972 and currently has a network of offices throughout Ireland. In addition to providing supportive services, MDI is committed to promoting and supporting research, conducting annual general meetings, organizing special youth activities for its younger members, and offering a variety of educational materials.

0-9 - A - B - C - D - E - F - G - H - I - J - K - L - M - N - O - P - Q - R - S - T - U - V - W - X - Y - Z

NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.

Copyright ©2015 NORD - National Organization for Rare Disorders, Inc. All rights reserved.
The following trademarks/registered service marks are owned by NORD: NORD, National Organization for Rare Disorders, the NORD logo, RareConnect. .