The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.
International Network of Ataxia Friends
Quebec, H7K 3R7
The International Network of Ataxia Friends (INTERNAF) is a website and a mailing list for ataxia patients, family and friends that serves as a support group and information exchange vehicle. There are currently over 580 subscribers from more than 40 countries worldwide. Subscription is free. Ataxia is an impaired ability to coordinate certain voluntary movements. The condition may occur due to, or in association with, several different underlying disorders or conditions. Those who don't wish to receive 20 or more separate emails per day from the regular subscription option may choose to receive a summary email. There is also a list for professionals.
The National Organization for Rare Disorders (NORD) web site, its databases, and the contents thereof are copyrighted by NORD. No part of the NORD web site, databases, or the contents may be copied in any way, including but not limited to the following: electronically downloading, storing in a retrieval system, or redistributing for any commercial purposes without the express written permission of NORD. Permission is hereby granted to print one hard copy of the information on an individual disease for your personal use, provided that such content is in no way modified, and that credit for the source (NORD) and NORD’s copyright notice are included on the printed copy. Any other electronic reproduction or other printed versions are strictly prohibited.
NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.