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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

Huntington's Disease Society of America

a/k/a: HDSA


505 Eighth Avenue
Suite 902
New York, NY 10018





800 Number




Email Address




The Huntington's Disease Society of America (HDSA) is a national, voluntary health organization dedicated to improving the lives of people with Huntington's disease and to finding a cure for this disease. Huntington's disease is an inherited degenerative brain disorder characterized by irregular, involuntary movements; abnormal gait; slurred speech; and progressive disorientation and loss of intellectual function (dementia). Currently consisting of 40,000 members and 32 chapters across the United States, the society supports medical research into the causes and treatment of Huntington's disease, maintains a national network of services and referrals to assist affected individuals and families and offers a variety of materials through its brochures, newsletters, reports, audiovisual aids, and directory.

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