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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

Carter Centers for Brain Research in Holoprosencephaly and Related Malformations

a/k/a: CCBRH

Address

Texas Scottish Rite Hospital for Children
Department of Neurology
Dallas, TX 75219-3993
USA

Phone

214-559-8411

Fax

214-559-8383

800 Number

800-421-1121

TDD

--

Email Address

hpe@tsrh.org

Website

http://www.carterdatabase.org/hpe

The Carter Centers for Brain Research in Holoprosencephaly (CCBRH) represent the most concentrated study of holoprosencephaly in the world. The centers were created to gather, store, organize, analyze and share information about HPE, but most importantly, to help families find hope. Holoprosencephaly (HPE) is a neurological birth defect in which the fetal brain does not grow and divide, as it should during early pregnancy. The effects of this brain malformation can range from mild to severe. Specific chromosomal abnormalities and gene mutations have been identified in some patients and there is evidence that in some families, HPE is inherited.

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