You are here: Home / Rare Disease Information / Patient Organizations Database

Search Patient Organizations

Enter organization name or disease name to search for organizations that help people with rare diseases.

0-9 - A - B - C - D - E - F - G - H - I - J - K - L - M - N - O - P - Q - R - S - T - U - V - W - X - Y - Z


The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

MHE and Me- A Support Group for Kids with Multiple Hereditary Exostoses

a/k/a: MHE and Me


PO Box 651
Pine Island, NY 10969-0651





800 Number




Email Address


The MHE and Me is a support group for children with multiple hereditary exostoses (MHE). Besides providing peers and creating a supportive community for children with MHE, the organization provides families with educational materials and resources to best help the children affected by this rare genetic disorder. MHE is characterized by multiple bony growths or tumors (exostoses) that are covered by cartilage. These growths vary in size, location and number, depending on the individual. MHE and Me is a member of the MHE Coalition.

0-9 - A - B - C - D - E - F - G - H - I - J - K - L - M - N - O - P - Q - R - S - T - U - V - W - X - Y - Z

NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.

Copyright ©2015 NORD - National Organization for Rare Disorders, Inc. All rights reserved.
The following trademarks/registered service marks are owned by NORD: NORD, National Organization for Rare Disorders, the NORD logo, RareConnect. .