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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

MHE and Me- A Support Group for Kids with Multiple Hereditary Exostoses

a/k/a: MHE and Me

Address

PO Box 651
Pine Island, NY 10969-0651
USA

Phone

845-258-6058

Fax

845-258-6058

800 Number

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TDD

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Email Address

mheandme@yahoo.com

Website

http://www.mheandme.com/

The MHE and Me is a support group for children with multiple hereditary exostoses (MHE). Besides providing peers and creating a supportive community for children with MHE, the organization provides families with educational materials and resources to best help the children affected by this rare genetic disorder. MHE is characterized by multiple bony growths or tumors (exostoses) that are covered by cartilage. These growths vary in size, location and number, depending on the individual. MHE and Me is a member of the MHE Coalition.

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