The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.
MHE and Me- A Support Group for Kids with Multiple Hereditary Exostoses
a/k/a: MHE and Me
PO Box 651
Pine Island, NY 10969-0651
The MHE and Me is a support group for children with multiple hereditary exostoses (MHE). Besides providing peers and creating a supportive community for children with MHE, the organization provides families with educational materials and resources to best help the children affected by this rare genetic disorder. MHE is characterized by multiple bony growths or tumors (exostoses) that are covered by cartilage. These growths vary in size, location and number, depending on the individual. MHE and Me is a member of the MHE Coalition.
The National Organization for Rare Disorders (NORD) web site, its databases, and the contents thereof are copyrighted by NORD. No part of the NORD web site, databases, or the contents may be copied in any way, including but not limited to the following: electronically downloading, storing in a retrieval system, or redistributing for any commercial purposes without the express written permission of NORD. Permission is hereby granted to print one hard copy of the information on an individual disease for your personal use, provided that such content is in no way modified, and that credit for the source (NORD) and NORD’s copyright notice are included on the printed copy. Any other electronic reproduction or other printed versions are strictly prohibited.
NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.