You are here: Home / Rare Disease Information / Patient Organizations Database

Search Patient Organizations

Enter organization name or disease name to search for organizations that help people with rare diseases.

0-9 - A - B - C - D - E - F - G - H - I - J - K - L - M - N - O - P - Q - R - S - T - U - V - W - X - Y - Z


The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

American Hemochromatosis Society

a/k/a: AHS


4044 W. Lake Mary Blvd.
Suite 104 PMB 416
Lake Mary, FL 32746-2012





800 Number




Email Address


The American Hemochromatosis Society (AHS) is a 501(c)(3) non-profit organization dedicated to educating the public, medical community and media by distributing the most current information available on hereditary hemochromatosis (HH). This is a metabolic disorder characterized by excessive absorption of iron, which eventually damages numerous organs. The objectives of AHS include promoting population and newborn screening with genetic testing for HH, banning genetic discrimination and providing compassionate support of all patients with hereditary hemochromatosis. The AHS also has an information center - Neonatal Hemochromatosis Information Center (NHIC) at:

0-9 - A - B - C - D - E - F - G - H - I - J - K - L - M - N - O - P - Q - R - S - T - U - V - W - X - Y - Z

NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.

Copyright ©2015 NORD - National Organization for Rare Disorders, Inc. All rights reserved.
The following trademarks/registered service marks are owned by NORD: NORD, National Organization for Rare Disorders, the NORD logo, RareConnect. .