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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

Society for Mucopolysaccharidoses and Related Disorders

a/k/a: Ges fur MPS

Address

Finklham 90
Breitenaich, 4075
Austria

Phone

437-249-47795

Fax

437-249-47795

800 Number

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TDD

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Email Address

office@mps-austria.at

Chapters

2

Website

http://www.mps-austria.at/index.asp

The Gesellschaft für Mukopolysaccharidosen und ähnliche Erkrankunhen which translates to Society for Mucopolysaccharidoses and Related Disorders support and individual advocacy for families of MPS children and young adults in Austria. This voluntary, non-profit, self-help organization, which has approximately 200 members, organizes an annual family conference and other events. It raises money to promote research and make therapy possible. The Mucopolysaccharidoses are a group of hereditary lysosomal storage diseases. Deposits of mucopolysaccharides in the arteries, skeleton, joints, eyes, ears, skin, and teeth, and in the cardiovascular, respiratory, and central nervous systems characterize them.

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