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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

US Hereditary Angioedema Association, Inc.

a/k/a: HAA

Address

Seven Waterfront Plaza
500 Ala Moana Blvd., Suite 400
Honolulu, HI 96813

Fax

508-437-0303

800 Number

866-798-5598

TDD

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Email Address

info@haea.org

Website

http://www.haea.org

The US Hereditary Angioedema Association, Inc., is a non-profit organization dedicated to serving persons with angioedema resulting from CI inhibitor deficiency by increasing awareness of the disease and providing patients and physicians with authoritative and readily accessible information about it. The association also serves as a support network for patients, as well as an advocate for research seeking effective therapies and an ultimate cure. Hereditary angioedema is a rare inherited vascular disorder characterized by an excessive accumulation of body fluids that may block the normal flow of blood or lymphatic fluid, resulting in swelling at various locations in the body. With 150 members, the association provides services that include support groups, patient networking, a newsletter, and patient/professional education.

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