You are here: Home / Rare Disease Information / Patient Organizations Database

Search Patient Organizations

Enter organization name or disease name to search for organizations that help people with rare diseases.

0-9 - A - B - C - D - E - F - G - H - I - J - K - L - M - N - O - P - Q - R - S - T - U - V - W - X - Y - Z


The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

US Hereditary Angioedema Association, Inc.

a/k/a: HAA


Seven Waterfront Plaza
500 Ala Moana Blvd., Suite 400
Honolulu, HI 96813



800 Number




Email Address


The US Hereditary Angioedema Association, Inc., is a non-profit organization dedicated to serving persons with angioedema resulting from CI inhibitor deficiency by increasing awareness of the disease and providing patients and physicians with authoritative and readily accessible information about it. The association also serves as a support network for patients, as well as an advocate for research seeking effective therapies and an ultimate cure. Hereditary angioedema is a rare inherited vascular disorder characterized by an excessive accumulation of body fluids that may block the normal flow of blood or lymphatic fluid, resulting in swelling at various locations in the body. With 150 members, the association provides services that include support groups, patient networking, a newsletter, and patient/professional education.

0-9 - A - B - C - D - E - F - G - H - I - J - K - L - M - N - O - P - Q - R - S - T - U - V - W - X - Y - Z

NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.

Copyright ©2015 NORD - National Organization for Rare Disorders, Inc. All rights reserved.
The following trademarks/registered service marks are owned by NORD: NORD, National Organization for Rare Disorders, the NORD logo, RareConnect. .