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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

Engle Laboratory at Children's Hospital Boston


CLS 14076
300 Longwood Ave
Boston, MA 02115





800 Number




Email Address


The Engle Laboratory is a genetics research lab that is focused on identifying and understanding the genes involved in pediatric eye movement disorders, specifically congenital fibrosis of the extraocular muscles (CFEOM), congenital ptosis, and Duane syndrome. It is a not-for-profit research organization, providing services that include genetic counseling and publication of a newsletter. Established in 1992, the lab serves patients and families from around the world. It is based at Children’s Hospital in Boston.

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