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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

American Association for Klinefelter Syndrome Information and Support

a/k/a: AAKSIS

Address

c/o Roberta Rappaport
3796 Ogden Ln.
Mundelein, IL 60060-6038
USA

800 Number

888-466-5747

TDD

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Email Address

KSinfo@aaksis.org

Website

http://www.aaksis.org

The American Association for Klinefelter Syndrome Information and Support (AAKSIS) is a 501(c)(3) not-for-profit organization incorporated in Illinois. AAKSIS (pronounced "access") is a national voluntary organization with the mission of education, support, research and understanding of XXY and its variants, collectively known as Klinefelter syndrome. This disorder, characterized by the presence of an extra X chromosome, causes impaired function of the testes in males. AAKSIS supports greater awareness and understanding among the general public, medical profession, and affected men and their families through education and sharing of information about this medical condition and its effects. Established in 2000, the organization sponsors national and regional meetings, maintains a 24-hour hotline and web site, and publishes a newsletter and other informational materials.

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