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Peutz Jeghers Syndrome Online Support Group
Address
Phone
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Fax
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800 Number
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TDD
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Email Address
pj4steph@aol.com
Website
The Peutz-Jeghers Syndrome Online Support Group is a free e-mail support group for patients, families, friends, researchers, and physicians. It provides a forum to discuss clinical and non-clinical issues and advances pertaining to Peutz-Jeghers syndrome. This is a rare, inherited disorder characterized by multiple, initially benign nodular growths of the GI tract and an increased risk of cancer throughout the body. Discussion topics include patient experiences, psychosocial issues, new research, clinical trials, and discussions of current treatment practices. The group is one of several co-sponsored by the Association of Cancer Online Resources.
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